Where to find online support
Healing from a concussion or post-concussion syndrome can be an isolating experience, both for the person with the injury and the people supporting them. There is a surprisingly robust source of support and information to be found on online support groups - we are most familiar with Reddit and Facebook groups. We've found that Facebook groups are more active than the Reddit forums, but we encourage you to find your community wherever you feel most comfortable.
In this article: Facebook groups and Reddit forums (scroll down).
Facebook Groups
Facebook support groups operate as "closed" groups, meaning that you apply to join the group, usually answering a couple of entry questions. An administrator approves your membership and monitors the group to prevent trolls and advertisers. We've found that there is both emotional support and a significant amount of information shared about a wide range of treatment options.
These groups address both concussions and post-concussion syndrome, but typically members are dealing with concussions symptoms that have lasted longer than one month, which is now defined as post-concussion syndrome.
Facebook groups focused on concussion
Post Concussion Support-real support for all Concussion Types, 2.6K members
UK Post Concussion Syndrome Support Group, 364 members
Post Concussion Syndrome Support Group, 10.8K group members
Post Concussion Syndrome Support Group For Families, 1.9K Families
Amy's TBI Tribe, 9.7K members
Reddit forums
Reddit bills itself as the “front page of the internet” and is the fifth most popular website in the United States. It is a collection of forums which are called subreddits. You can read the comments on the subreddits without being a member, or join in order to be able to post comments. We follow three subreddits concerning concussions:
Post-concussion syndrome subreddit
TBI subreddit (scroll down the subreddit page to see the comments.)